Scleroderma & Raynaud's UK (SRUK)

The SRUK Walk 2026

Beth Usher

Beth Usher

Beth Usher
Fundraising as part of team: The Ushers

My Story

Six years ago, at 26 years old, I was finally diagnosed with scleroderma after suspecting for years that something wasn't right. My journey with autoimmune disease actually began much earlier, when I was diagnosed with Juvenile Idiopathic Arthritis (JIA) at just 12 years old.

What makes this diagnosis especially personal is that I already knew what scleroderma was, my little sister had been diagnosed years before me. Seeing someone you love face a rare disease is difficult enough, learning that you share that journey is something else entirely.

I'm taking on this walk for SRUK to help raise awareness of a disease that too many people have never heard of. I walk for myself, for my sister, and for the incredible people I've connected with through my advocacy work who cannot be here to walk for themselves today.

Every donation helps support research, awareness, and those living with scleroderma. Thank you for helping us give this rare disease the recognition it deserves. 

119%

Funded

  • Target
    £300
  • Raised so far
    £358
  • Number of donors
    19

My Story

Six years ago, at 26 years old, I was finally diagnosed with scleroderma after suspecting for years that something wasn't right. My journey with autoimmune disease actually began much earlier, when I was diagnosed with Juvenile Idiopathic Arthritis (JIA) at just 12 years old.

What makes this diagnosis especially personal is that I already knew what scleroderma was, my little sister had been diagnosed years before me. Seeing someone you love face a rare disease is difficult enough, learning that you share that journey is something else entirely.

I'm taking on this walk for SRUK to help raise awareness of a disease that too many people have never heard of. I walk for myself, for my sister, and for the incredible people I've connected with through my advocacy work who cannot be here to walk for themselves today.

Every donation helps support research, awareness, and those living with scleroderma. Thank you for helping us give this rare disease the recognition it deserves. 

Beth Usher is fundraising towards